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Are you here looking for support and answers?

We understand that sometimes you'll feel low and like you are having a dark day...

BUT you are not alone!

Please please email us, message us, ring us, contact us on social media or write to us and we will point you in the right direction for help and support.

There is a forum style Facebook group originally set up by Donna Skirwut, specifically designed to allow individuals and families affected by Vanishing White Matter, to share stories, find moral support and make friends with others in similar situations.

*Please note this group is for individuals who have been directly affected by VWM so please contact us for information on how to join. Press, sales persons and companies are not permitted to join this group. This is a support group only.